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Colin Farrell understands what it's like to have a child with special needs. JUSTIN TALLIS / AFP/Getty Images. That advice served the Irish actor well when his son, James, now 14, was diagnosed with. Angelman syndrome, a rare neuro-genetic disorder characterized by developmental delays, lack.. "I would also say that my heart is with you all, along with my respect for you, for your childrens struggles and for the love that you have for your children and that I wish you all peace and support in the face of any.. You are not alone. The message at the annual summit, which raised 4.1 million for Angelman research, was full of hope. We have meaningful therapeutics in the palm of our hands, said Allyson Berent, chief science officer at FAST. Dr. Edwin Weeber, who has worked..

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Dec. 19, 2017, 9:48 PM GMT / Source: TODAY Contributor. By Christina Poletto Colin Farrell has a message for parents of children with special needs: Reach out. You are not alone. The struggles of a child with special needs can be so brutal that they.

That is what the evening is all about, it truly is. Every year I leave humbled and grateful for our community and for the beauty of the spirits of our children. I remember what a shock it was to receive this life-changing diagnosis for Theo.

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